Sometimes the numb sneaks up on me and settles in under my awareness leaving disconnection, isolation, and feelinglessness in place of life. I trudge on through days or weeks (sometimes years) without knowing I’m disconnected from deep emotion. Then suddenly it passes and I am flooded with the disconnected emotion returning. Like a couple of days ago when I found myself wanting to cry when I should have been relieved.
Yesterday I took a new (to me) camera lens out for a test spin. As so often happens, focusing on something else which requires me to be completely present and in the world let my subconscious work. As I wandered about learning just how shallow of a depth of field an 85mm f/1.8 camera lens has, things started to shift into place.
Earlier this year, in the middle of realizing we were going to need to move across the country, I found out I likely have thyroid cancer. Apparently, there hasn’t been enough trauma in my life, so the universe added the big “C” to my story.
It started simply enough in January at my annual physical. My doctor felt something on one lobe of my thyroid, and so out of an abundance of caution she sent me to have an ultrasound. It came back suspicious. Which prompted an FNA (Fine Needle Aspiration) biopsy. Which came back as very suspicious. A sample was sent for further testing, which came back as likely cancer… but not completely positive. I was for a few moments, very appropiately freaked out, but soon slid into numbness as it became too much. Dysfunctional coping skills learned in childhood to live with repeated trauma resurfaced to help me avoid feeling this too.
The next step is a Surgical Biopsy, which is a misnomer since it means actually taking out that half of the thyroid. So while my life is turning over, I consult with a surgeon and set a date for surgery in Atlanta after we are set to move to Chicago. It’s the only real step I can take, so blind and numb, I accept it. Then a few weeks later after we switch our move destination to California. I manage to wrangle a consult with a surgeon in the Bay Area.
The day after our one-way trip to SFO, I meet my new surgeon. We set August 14th as my new surgery date. Already overloaded with the move, there is only a twinge of feeling. Then nothing.
The surgery came and went, along with my whole thyroid since a rapid pathology check during the surgery finally confirmed cancer. So my “surgical biopsy” became a Thyroidectomy. Post surgical pathology confirmed good margins all around the spots of cancer, but also that it has spread to an adjacent lymph node.
That bit in a lymph node raised my risk. So, I was sent for a RAI (RadioActive Iodine) scan to check for further spread and assess for the need of RAI therapy. The 90 minutes I spent having to lie perfectly still in that machine while sensors looked for gamma rays emitted by the I-123 absorbed by any thyroid remnants and possible spots of cancer gave me a chance to use another of my childhood survival skills – disconnecting from the current moment by dissociation. The followup consult with the nuclear medicine doctor brought good news. Besides the expected thyroid remnants, there was nothing. No further spread.
I should have been relieved, joyous, happy; a weight lifted off my shoulders. Instead for the last two days, all I’ve felt is scared. All I’ve wanted to do is cry. I can feel it just under the surface, ready to spill forth, but it hasn’t yet. I’m not quite unstuck from numb.
Walking around yesterday with my new camera lens, I was getting frustrated at taking so many out of focus shots. As I fiddled and adjusted, I found that a higher f-stop gave me clear subjects. Then I discovered things further away were in better focus even when the lens was wide open. By the end of my walk I was getting several keepers. I wasn’t creating art yet, but I was figuring out how with extra care and attention I could create beauty with this lens.
Later in the evening as I was sorting photos and discarding (so, so many) bad ones, I could more clearly see on the larger display of my computer what had been happening. Taking photos with the lens wide open at a distance of about 6 feet, the depth of field (the range of what is in focus) is only about 1.5 inches. Everything closer or further away than that thin slice of space 6 feet away is fuzzy –out of focus. A breeze moving a flower back and forth pushes the bloom out of the small range which is in focus. One petal might be sharp, but the rest of them would be blurry.
This lens, as glorious as it is, has a very narrow window of tolerance for focus. So it appears do I.
Faced with something overwhelming, such as cancer, and then topped with the possibility of metastasis, I flew out of my narrow window of tolerance for feeling emotion. I dropped right back to my long-practiced coping mechanism of numb. Getting diagnosed with cancer is a traumatic event. It leaves no control over what will happen. It leads to pain, to suffering, and possibly even to death. These experiences are literally the very things which cause PTSD. A traumatic childhood set me up to deal with future trauma reflexively in the way I always had.
So here I am with a new lens on my life. I have to handle things very carefully. I can still create art, make a life worth living, and feel my feelings, but it takes great attention and skill when even the slightest breeze can blow me out the window into numb.